Access to personal health information (11) Personal health booklets (6)

13 July, 2020

It may be useful for HIFA readers to know a little about the Summary Care Record of personal Health data in England:

NHS “Summary Care records (SCRs) are an electronic record of important patient information, created from GP (family doctor) medical records (100% of GPs use digital records).

They can be seen and used by authorised staff in other areas of the health and care system involved in the patient’s direct care.

“Patients can ask to view or add information to their SCR by visiting their GP practice.

Access to SCR information means that care in other settings is safer, reducing the risk of prescribing errors. It also helps avoid delays to urgent care.

At a minimum, the SCR holds important information about;

· current medication

· allergies and details of any previous bad reactions to medicines

· the name, address, date of birth and NHS number of the patient

Additional Information in the SCR, such as details of long-term conditions, significant medical history, or specific communications needs, is now included by default for patients with an SCR, unless they have previously told the NHS that they did not want this information to be shared. There has been a temporary change to include COVID-19 specific codes in relation to suspected, confirmed, Shielded Patient List and other COVID-19 related information within the Additional Information.

”Specific sensitive information like fertility treatments, sexually transmitted infections, pregnancy terminations and gender reassignment will not be automatically included when the information is added. Sensitive information is excluded through the RCGP sensitive dataset. Full downloads of the GP Summary Code List releases (Generalpracticesummarydatasharingexclusionforassistedfertilisation, Generalpracticesummarydatasharingexclusionforgenderrelatedissues, Generalpracticesummarydatasharingexclusionforsexuallytransmitteddisease and Generalpracticesummarydatasharingexclusionforterminationofpregnancy) are available on the Technology Reference Data Update Distribution site.

HIFA profile: Richard Fitton is a retired family doctor - GP, British Medical Association. Professional interests: Health literacy, patient partnership of trust and implementation of healthcare with professionals, family and public involvement in the prevention of modern lifestyle diseases, patients using access to professional records to overcome confidentiality barriers to care, patients as part of the policing of the use of their patient data

Email address: richardpeterfitton7 AT