Excellent post. Couldn't agree more. We need more accountability of data accrued- and this includes medical research data - and accountable data protection. Commercialisation of identifiable patient records across a global digital market could deprive patients of employment, housing etc., when your sensitive data is 'sold' to your employer, or your landlord. It could potentially destroy your professional reputation, or render your 'employment' impossible when you've been turned into nothing but a biotech data slave of your own industry.
HIFA Profile: Fiona Branson is director of a therapeutic/educative theatre company, NutCase Theatre Limited, UK. Her professional interests include the promotion of education, equality and understanding worldwide, theatre, music, art, human rights.
Email: fiona.branson AT btopenworld.com