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Sickle cell disease

6 February, 2019

Dear All,

The highest frequency of sickle cell disease is found in tropical regions, particularly sub-Saharan Africa, tribal regions of India and the Middle East. https://en.wikipedia.org/wiki/Sickle_cell_disease#Epidemiology The role of migration is critical in understanding of SCD mapping, reported worldwide with high prevalence in Sub-Saharan Africa, Caribbean, Mediterranean basin, India and middle Asia and elsewhere in carriers' migration areas. https://fr.wikipedia.org/wiki/Dr%C3%A9panocytose

The United Nations General Assembly has recognized SCD in as a global public health concern due to the morbidity and mortality caused by the disease and the significant social and economic impacts. https://www.un.org/press/en/2008/ga10803.doc.htm

SCD is also reported in Democratic Republic of Congo (DRC), the prevalence is high with 25 to 30% of sickle cell trait in the general population and affects approximately 1.4% of newborns. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5472240/ DRC mapping quote the Haut LOMAMI province and Luba Katanga subethnicgroup as main SCD group besides other. Mixed marriages among people belonging to more five ethnics groups and furthermore than 450 tribes explain high prevalence. SCD health system is very low, meantime SCD WHO framework emphasizes in prevention (genetic screening before marriage, public awareness campaign to raise public knowledge) and improve the management of sickle cell disease (Early detection – screening and patient quality of life improvement to minimize attacks, Disease management)

In practice, we need to consider what is said in this discussion, these practical strategies have force of change whether implemented.

Andre Shongo Diamba

HIFA profile: Andre Shongo Diamba is a Medical Doctor, holder of MPH-International Health from Tulane University (USA), Founder and Director atPHOrg – Public Health Organization.

PHOrg is a Congolese (Democratic Republic of Congo - DRC) NGO of Health System strengthening; country health system,specific fields health system (Emergency, Reproductive Health, Family Planning,etc.) or Disease health system. By using Information and communication technologies supports, PHOrg shares information in health in all DRC 26 provinces via focal points charged to disseminate them at their local networks. One by one, thematic related to the quality of health care services provided,human resources in health, information system, vaccines, medicines andtechnologies, health financing mechanisms, and leadership and governance arediscussed and updated. PHOrg envisionsthe Primary Health Care in the path of Universal Health Coverage in DRC.

He is an experiencer’s occupational inReproductive Health, Population Health Environment, procreation anddevelopment. Andre worked at PISRF - Programme Intégré de santé de reproductionet familial (Integrated Program of Reproductive Health and Family), DRC participative NGO of Family Planning and Reproductive Health in low income areas.

Andre is promoting Social Development Goal(SDGs) in the DRC, He pledges for board public private partnership for development.

He received the HIFA Country Representatives certificate of achievement in 2013.



Andre can be contacted at phorg_healthforall@yahoo.com , drashongo@yahoo.fr