WHO's Public Consultation on Human Genome Editing (Deadline for responses: 7 February 2020)

4 February, 2020

Sent on behalf of PAHO/WHO Equity, Health and Human Development – Lista Equidad

WHO's Public Consultation on Human Genome Editing

World Health Organization, Expert Advisory Committee on Developing Global Standards for Governance and Oversight of Human Genome Editing

Deadline for responses is: 7 February 2020

The WHO Expert Advisory Committee on Developing Global Standards for Governance and Oversight of Human Genome Editing (the Committee) was set up by the Director General of the WHO in December 2018 to examine the scientific, ethical, social and legal challenges associated with human genome editing (both somatic and germ cell). As well as evidence gathering, the panel was asked to review the current literature on the state of the research and its applications, and societal attitudes towards the different uses of this technology. Following this, WHO will receive advice from the Committee on appropriate oversight and governance mechanisms, at the international, regional, national and local levels.

In order to fulfil this remit, the Committee is in the process of developing a governance framework. In an effort to understand and include a wider set of views, the Committee is consulting on features that should be included in this framework, and governance-related issues. Note that the Committee is committed to consulting further on a revised and more detailed draft of the framework developed on the basis of its consultations.

More information: http://bit.ly/370t2Ha

Online consultation form: https://extranet.who.int/dataform/879237

A DRAFT Governance Framework for Human Genome Editing https://www.who.int/ethics/topics/human-genome-editing/Governance-framew...

Consulta pública de la OMS sobre la edición del genoma humano

Llamado a contribuciones. La Organización Mundial de la Salud ha establecido un comité asesor experto para dar recomendaciones sobre los mecanismos apropiados para la gobernanza de la edición del genoma humano. Como parte del proceso de desarrollar un marco de gobernanza, el comité hace un llamado a contribuir con comentarios al borrador (en inglés) de ese marco. La fecha límite para dar comentarios es el 7 de febrero del 2020. Para contribuir vaya a http://bit.ly/370t2Ha. Las contribuciones deben enviarse en inglés.

Para facilitar la participación de la Región de las Américas, el Programa Regional de Bioética de la Organización Panamericana de Salud Pública (OPS) recibirá contribuciones en español y las traducirá para el comité de la OMS. Para enviar contribuciones en español use el formato del cuestionario disponible como PDF en http://bit.ly/370t2Ha y envíelo a bioethics@paho.org. La fecha límite para recibir contribuciones en español es el 3 de febrero.

The author/source alone is responsible for the views expressed in this article/publication or information resource, and they do not necessarily represent the positions, decisions or policies of the Pan American Health Organization. = El autor/fuente es el único responsable por las opiniones expresadas en este artículo/publicación o recurso de información y no necesariamente representan las posiciones, decisiones o políticas de la Organización Panamericana de la Salud.

* La versión el español del resumen no es oficial y fue preparada con el único propósito de informar y facilitar la diseminación de la información entre los miembros de la Lista Equidad. The moderator has provided the unofficial Spanish version of the abstract with the sole objective to inform and facilitate the dissemination of information through the Equity list.

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Pan American Health Organization, the Regional Office of the World Health Organization for the Americas

Department of Evidence and Intelligence for Acting in Health (EIH)

Knowledge Management (KM)

For additional information and to to send contributions, please follow this link http://equity.bvsalud.org/general-criteria/ or ontact Eliane P. Santos - Advisor, Knowledge Management and Networks – KM/EIH/pereirae@paho.org