Access to personal medical records (10) Systematic review: 'may provide little to no benefit' (2)

3 June, 2021

Thank you for sharing the results of this systematic review regarding access to personal health records. The results as shown in the review indicate the increased risk and of course the many limitations surrounding the review including the size of the sample being not representative. Despite all this one would ask where is the evidence that shows access to personal health records (diabetes or else) increases awareness, reduces anxiety, improves health information seeking behavior, builds better relations between health care providers and patients, etc. I am surprised to see these results on the assumption that when patients know more about their own health condition, they tend to be more careful, more attentive to their health situation, more careful regarding what they eat, healthy life style, the different social determinants of health, etc. Does the review say “patients are better off knowing less about their health status?”

Best regards.

Najeeb Al-Shorbaji, PhD, FIAHSI

Consultant, Knowledge Management and eHealth

Mobile: +962 799391604

Tel.: +962 (6) 5240273

Website: www.shorbaji.net

e-Marefa Advisor

President, Jordan Library and Information Association

President, eHealth Development Association, Jordan

President, Middle East and North Africa Health Informatics Association

IMIA Vice-President for MEDINFO 2021-2023

Part-time Lecturer & Researcher in Medical Informatics, PLR, Germany

ORCID ID 0000-0003-3843-8430

HIFA profile: Najeeb Al-Shorbaji recently retired from the World Health Organization (WHO), where he has worked since 1988 in different capacities. He was most recently Director of the Knowledge, Ethics and Research Department at WHO headquarters, Geneva. Previously he was Coordinator for Knowledge Management and Sharing in EMRO (Eastern Mediterranean Regional Office), Egypt. He is a member of a number of national and international professional societies and associations specialised in information management and health informatics. He has authored over 100 research papers and articles presented in various conferences and published in professional journals. He is a member of the HIFA Steering Group and the HIFA Working Group on Multilingualism.

http://www.hifa.org/support/members/najeeb

http://www.hifa.org/projects/multilingualism

Email: shorbajin AT gmail.com