Transparent communication among patients, families and clinicians: Open Notes and Ethical Challenges

23 October, 2021

Forwarded by: HIFA profile: Richard Fitton is a retired family doctor - GP, British Medical Association. Professional interests: Health literacy, patient partnership of trust and implementation of healthcare with professionals, family and public involvement in the prevention of modern lifestyle diseases, patients using access to professional records to overcome confidentiality barriers to care, patients as part of the policing of the use of their patient data

Email address: richardpeterfitton7 AT gmail.com

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https://www.opennotes.org/news/9-must-read-publications-open-notes-and-e...

9 Must-Read Publications: Open Notes and Ethical Challenges

[*see note from HIFA moderator below]

About OpenNotes

OpenNotes is an international movement committed to spreading and studying the effects of transparent communication among patients, families and clinicians. We are motivated by evidence indicating that when health professionals offer patients and families ready access to clinical notes, the quality and safety of care improves.

As the 21st Century Cures take effect, clinicians are legally mandated to share access to patients’ notes. But is this the right thing to do? All innovations invite new challenges, and open notes are no different. At OpenNotes we study the ethical implications of sharing clinical notes and the ethical consequences for patients of clinicians hiding documentation. Our goal is to empower patients and clinicians by exploring how clinicians can optimize note sharing for the benefit of patients and their caregivers while also upholding - and even enhancing - the he accuracy and detail of the clinical record by partnering with patients.

The research below reflects some of the ethical questions we have explored. The publications listed can also be found on the OpenNotes Research page.

Note: Most publications are open access or can be acquired by contacting the corresponding author listed on the website.

Blease C. We need to talk about “closed notes,” BMJ Opinion, Oct. 15, 2021.

Blease C, Salmi L, Rexhepi H, et al. Patients, clinicians and open notes: information blocking as a case of epistemic injustice. Journal of Medical Ethics.doi:10.1136/ medethics-2021-107275

Blease C, DesRoches C, Hägglund M, et al. Knowledge, power, and patients: The ethics of open notes. Journal of Medical Ethics Blog (2021).

Blease C, Fernandez L, Bell S, et al., Empowering patients and reducing inequities: is there potential in sharing clinical notes? BMJ Quality & Safety, http://dx.doi.org/10.1136/bmjqs-2019-010490

Blease C, Kharko A, Hägglund M, et al. The benefits and harms of open notes in mental health: A Delphi survey of international experts. PLoS ONE 16(10): e0258056. https://doi.org/10.1371/journal.pone.0258056

Blease C, O’Neill S, Torous J. et al. Patient Access to Mental Health Notes: Motivating Evidence-Informed Ethical Guidelines. The Journal of Nervous and Mental Disease, 209(4), pp.265-269.

Blease C, Torous J, Kharko A, et al. Preparing Patients and Clinicians for Open Notes in Mental Health: Qualitative Inquiry of International Experts. JMIR Ment Health 2021;8(4):e27397

Blease C, O’Neill S, Walker J, et al. Sharing notes with mental health patients: balancing risks with respect[r1] . The Lancet Psychiatry. February 11, 2020. DOI: 10.1016/S2215-0366(20)30032-8

Blease C, Torous J, Kharko A, et al. Preparing Patients and Clinicians for Open Notes in Mental Health: Qualitative Inquiry of International Experts. JMIR Ment Health 2021;8(4):e27397

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[*Note from HIFA moderator (Neil PW): Thank you Richard, it is good to know there is an international movement for transparent communication among patients, families and clinicians. @HIFA_org is now following Charlotte Blease on Twitter. Please do reach out to her and Open Notes to explore opportunities for collaboration. Thanks to you, I have become more aware over the past 2 years that access to personal medical records is an important part of the information people need to protect their health and the health of others]