Disability data - join the conversation!

11 February, 2020

Dear all,

I would like to invite those of you interested in disability rights to participate in a Twitter chat next week, on disability data and how to improve the evidence on what works to increase the inclusion of people with disabilities.

The chat will be at 3-4pm GMT (10am EST) on Thursday 20 February. More information is pasted below and also available here: https://research.sightsavers.org/disability-in-research-twitter-chat/

I hope you’ll consider joining the conversation. If so, let me know! I am happy to answer any questions you may have.

With kind regards,


Anne Roca

Global Advisor, Research Uptake and Learning

There's a global lack of evidence about how many people have disabilities, and about the effectiveness of measures to increase the inclusion of people with disabilities in all areas of life.

At Sightsavers, we want to find new ways to make sure that disability is given more attention within research.

Join us for a Twitter chat from 3-4pm GMT (10am EST) on Thursday 20 February, where we’ll be discussing the current lack of evidence about disability in in low- and middle-income countries, and exploring what can be done to ensure that disability is more prominent on the global research agenda.

How to take part..

At 3pm, introduce yourself and let us know you’ve joined.

Then, just look out for the questions every 10 minutes starting ‘Q1’, ‘Q2’ etc. Tweet your answers by hitting ‘reply’ to the tweet and using ‘A1’, ‘A2’ etc at the start. If your answer is split over a couple of tweets, you can thread them together by replying to your previous post.

Don’t forget to include the hashtag #DisabilityResearchChat.

If you would like to prepare in advance, here are the questions we’ll be tweeting on the day:

1. There is a lack of reliable evidence on disability, particularly in low- and middle-income countries. Why?

2. How can we ensure that disability is given more prominence in global research?

3. Academic institutions and NGOs work hand in hand in doing disability research, but what are the key differences between academic and NGO-led research?

4. How can we get better at meaningfully engaging people with disabilities in research in the Global South?

5. What are the most pressing questions that should be on the disability research agenda?

HIFA profile: Anne Roca is a Global Advisor on Research Uptake and Learning at Sightsavers in the UK. Sightsavers is a global development organization doing research and implementing projects on eye health, NTDs, social inclusion, and education around the world. Before joining Sightsavers, Anne was a Senior Editor for The Lancet Global Health for over 3 years. Her experience also includes working for the Pan American Health Organization for almost 10 years, as a Technical Advisor on topics related to epidemiology, multilingual information dissemination, and knowledge management. She was also an independent consultant for several years, assisting researchers, NGOs and other institutions in sharing the product of research through writing, editing, and management of information. She holds a Master's degree in Public Health from the Johns Hopkins University. She is a member of the HIFA working group on Multilingualism.



Email: aroca@sightsavers.org