[Re: https://www.hifa.org/dgroups-rss/call-programme-proposals-launched-un-wo... ]
Data are facts and statistics, collected for reference or analysis. Information is data presented in a way that can be comprehended. Knowledge is the product of two or more pieces of information or data with reference to one piece of data or information.
Understanding is the product of the application of two or more bits of knowledge to assess or interpret a piece of data or information. Wisdom is the product of observing the repeated effect of the application of knowledge and understanding to data. Intelligence is the capacity for abstraction, logic, understanding, self-awareness, learning, emotional knowledge, and reasoning [Wikipedia]. Critical thinking is the process of analysing available facts, evidence, observations, and arguments, in order to make sound conclusions or informed choices. Agency is the ability to act and respond to the data, information, knowledge, understanding, and wisdom. A contention of supporters of patient access to, or ownership of records, is that access to medical records is a necessary tool for patients' critical thinking and patient agency, especially as 99% of the implementation of a continuing disease is performed by a patient.
The goal of the UN Global Digital Compact "is an inclusive, open, sustainable, fair, safe and secure digital future for all. This Global Digital Compact sets out the objectives, principles, commitments and actions we undertake to achieve it in the non-military domain. The UN has strong foundations on which to build. Their digital cooperation rests on international law, including the Charter of the United Nations, international human rights law and the 2030 Agenda for Sustainable Development. The UN remains committed to the outcomes of the World Summit on the Information Society reflected in the Geneva Declaration of Principles and Plan of Action and the Tunis Agenda for the Information Society.The United Nations provides a critical platform for the global digital cooperation we need, and we will harness existing processes to do so.
We hope to be able to present a model for global personal health data governance to the next UN World Data Conference.
R
HIFA profile: Richard Fitton is a retired family doctor - GP. Professional interests: Health literacy, patient partnership of trust and implementation of healthcare with professionals, family and public involvement in the prevention of modern lifestyle diseases, patients using access to professional records to overcome confidentiality barriers to care, patients as part of the policing of the use of their patient data Email address: richardpeterfitton7 AT gmail.com