G7 International Patient Summary Roadmap (publishing.service.gov.uk)
https://assets.publishing.service.gov.uk/government/uploads/system/uploa...
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Purpose of this report: This International Patient Summary roadmap (G7-IPS) supports the G7 commitment to deliver on the rights of patients to have access to their health information, and through using open and interoperable standards it enables this information to be used at the point of treatment or care. The roadmap outlines the component parts required for implementation and the standards which will be used to ensure alignment and interoperability across the G7 community. Although developed by the G7 countries, other countries, should they wish to, will be able to adopt the same principles and use the open and interoperable resources
To achieve this goal, we will work with the Global Digital Health Partnership as they are already advancing IPS efforts.
Citizen online access to information - prinnciples and ambitions
Patients who are actively involved in their own health and care report a more positive experience of the services they access. Their involvement and engagement is supported by access to accurate and up-to-date information about their health, alongside increasing their knowledge of health and wellbeing generally.
In many countries, a patient's right of access to their health information is enshrined in law, and active patient access and use of this information is becoming a reality. To make this more universally available and accelerate implementation, the G7 countries are looking to adopt the following principles:
- patients have a right to view online, download, print and share their health information for the purpose of healthcare treatment (subject to legal limitations - for example, third-party informatiion or information that would be
- harmful to the patient and so on, and age restrictions governed by the countries' local legislation)
- patients are encouraged to use their health information to manage their health
- patients can contribute information to their health record
- providers will offer online access to health information via appropriate patient-facing services (apps, website portal, and so on)
- an audit trail of who accessed the patient's IPS record will be available
Within EU countries and the UK, these principles are building on the rights enshrined in the General Data Protection Regulation (GDPR), specifically the right to access one's own personal data.
The roles and responsibilities are described as those of:
- data subject (the patient)
- data controller
- data processor
Some countries also use the term 'data owner', however this definition is not universal and is not interpreted the same way across countries.
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HIFA profile: Richard Fitton is a retired family doctor - GP, British Medical Association. Professional interests: Health literacy, patient partnership of trust and implementation of healthcare with professionals, family and public involvement in the prevention of modern lifestyle diseases, patients using access to professional records to overcome confidentiality barriers to care, patients as part of the policing of the use of their patient data
Email address: richardpeterfitton7 AT gmail.com
