HIFA Global Consultation (13) The questions: an aide-memoire

30 November, 2023

Dear HIFA colleagues,

From 21 August to 15 October, over 2400 people completed our online survey in official relations with the World Health Organization. The consultation has now moved to the HIFA forums (here), where we shall continue to explore the questions interactively. The findings of the survey and discussion will be synthesised in a report to WHO by January 2024.

To guide our discussion, please see the contents of the survey here: https://www.hifa.org/sites/default/files/publications_pdf/HIFA-Survey.pdf

We invite contributions on any of the questions of the survey. Please send your contribution by email to: hifa@hifaforums.org

How important is access to reliable healthcare information?

Q4: Access to reliable healthcare information is (or should be) a human right

Q5: Improving the availability and use of reliable healthcare information would lead to substantial improvements in quality of care and health outcomes

Q6: Universal health coverage cannot be achieved without universal access to reliable healthcare information

Q7: More support is needed for health literacy (helping people find, understand and use healthcare information)

What should be done to improve access to reliable healthcare information?

The World Medical Association Policy Statement on Healthcare Information For All is the highest-level consensus statement to date, representing 10 million doctors worldwide.

Q8: Which of the seven World Medical Association recommendations (listed below) do you think are most important to achieve universal access to reliable healthcare information? Please select TWO (2) options

Support initiatives to improve access to reliable healthcare information

Promote standards of good practice and ethics

Support research to identify enabling drivers and barriers

Ensure that health workers have access to reliable healthcare information

Combat myths and misinformation

Urge governments to recognize their moral obligation

Urge governments to provide political and financial support to WHO

We now invite you to consider each of the seven recommendations in turn:

Q9: There should be more support for initiatives that improve access to reliable healthcare information

Q10: There should be higher standards of practice and ethics among information providers

Q11: There should be more support for research on the availability and use of reliable healthcare information

Q12: More should be done to ensure that health workers have access to reliable healthcare information

Q13: More should be done to protect people from misinformation

Q14: Governments should recognise their obligation to improve the availability and use of reliable healthcare information

Q15: Governments should provide more support for WHO to 'extend to all peoples the benefits of medical, psychological and related knowledge' as described in the WHO Constitution (1948)

What should WHO and HIFA do to accelerate progress?

Q16: The World Health Organization is a leading publisher of reliable healthcare information and supports a number of important several healthcare information initiatives. What more can WHO do to accelerate progress towards universal access to reliable healthcare information?

Make a public commitment to accelerate progress towards universal access to reliable healthcare information

Support stakeholders to develop a strategy for universal access to reliable healthcare information

Increase investment in WHO publications

Promote access to reliable information in languages other than English

Other:

Q17: HIFA aims to bring stakeholders together around the shared goal of universal access to reliable healthcare information. What more can HIFA do to accelerate progress?

Q18: Your response to this question will help prioritise action in 2024 and beyond. The draft HIFA-WHO collaboration plan has five action areas. Which areas are most important?

To promote WHO advocacy to achieve universal access to reliable healthcare information

To provide WHO with access to experience and expertise on information needs and how to meet them

To support WHO's role as a leading provider of reliable healthcare information

To support the dissemination and uptake WHO’s publications, information and public health messages

To support WHO's role in meeting information needs in languages other than English

Other:

Q19: HIFA seeks financial and technical partners to implement the HIFA-WHO collaboration plan in 2024 and beyond. Are you willing for HIFA to contact you to explore whether and how you can support our work?

Please select TWO (2) options

To promote WHO advocacy to achieve universal access to reliable healthcare information

To provide WHO with access to experience and expertise on information needs and how to meet them

To support WHO's role as a leading provider of reliable healthcare information

To support the dissemination and uptake WHO s publications, information and public health messages

To support WHO's role in meeting information needs in languages other than English

Other:

HIFA profile: Neil Pakenham-Walsh is coordinator of HIFA (Healthcare Information For All), a global health community that brings all stakeholders together around the shared goal of universal access to reliable healthcare information. HIFA has 20,000 members in 180 countries, interacting in four languages and representing all parts of the global evidence ecosystem. HIFA is administered by Global Healthcare Information Network, a UK-based nonprofit in official relations with the World Health Organization. Email: neil@hifa.org