Esha describes patients as "Agent"(s) of their own care". Recent moves to share clinical health data with patients and their proxies raise more positive opportunities. This requires a culture change.
In 2000 academics at the then University of Manchester Institute of Science and Technology wrote a report - "Patient centred practice" in which the authors reported 4 elements existing at different levels of awareness within any organisation.
1. Basic assumptions,
2. Values,
3. Norms,
4. Artefacts
“the change process can be influenced by: moving towards customer-centred organisations, breaking down internal and external barriers to change, disseminating knowledge and developing synergy across functions."
In 2001, I gave evidence in the trial of Dr Harold Shipman, Wikipedia
https://en.wikipedia.org/wiki/Harold_Shipman
following which I and six patients presented thoughts on patient safety and transparency at a National Patient Safety Conference in London in 2003.
We utilised the Institute of Medicine report "Crossing Quality Chasm" as a reference as 6 patients presented their positive stories of patient participation at Hadfield Medical Centre. We hope to be able to raise these issues of the ten rules at Geneva in September. May see you there?
Crossing the Quality Chasm: A New Health System for the 21st Century - PubMed (nih.gov) https://pubmed.ncbi.nlm.nih.gov/25057539/
*New rules to redesign and improve care*
1. Care based on continuing healing relationships.
2. The system of care should be designed to meet the most common types of needs, but have the capability to respond to individual patient choices and preferences.
3. Patients should be given the necessary information and the opportunity to exercise the degree of control they choose over the health care decisions that affect them encouraging shared decision-making.
4. Patients should have unfettered access to their own medical information and to clinical knowledge. Clinicians and patients should communicate effectively.
5. Patients should receive care based on the best available scientific knowledge. Care should not vary illogically from clinician to clinician.
6. Patients should be safe from injury caused by the care system.
7. The health care system should make information available to patients and their families that allows them to make informed decisions including the system's performance on safety, evidence-based-practice, and patient satisfaction.
8. The health system should anticipate patient needs, rather than simply responding.
9. Health system should not waste resources or patient time.
10. Clinicians and institutions should actively collaborate and communicate, exchanging appropriate information and coordinating care.
HIFA profile: Richard Fitton is a retired family doctor - GP. Professional interests: Health literacy, patient partnership of trust and implementation of healthcare with professionals, family and public involvement in the prevention of modern lifestyle diseases, patients using access to professional records to overcome confidentiality barriers to care, patients as part of the policing of the use of their patient data. Email address: richardpeterfitton7 AT gmail.com
