Data saves lives: reshaping health and social care with data - GOV.UK (www.gov.uk)
https://www.gov.uk/government/publications/data-saves-lives-reshaping-he...
A small step forward in the road to data to research to evidence to policy. Patient transparency consent and government and professional oversight of use of GP data for research. 61,654,788 patients registered at GP practices 1 May 2022. Population of UK 67.89 million 2020.
Every GP registered patient has a Digital record on one of 3 or four digital EHR systems and data for research can - with appropriate information governance search that data during or outside of a crisis.
"The government has set out its new data strategy for health and social care in England and put “public trust and confidence front and centre” after widespread concern over consent and confidentiality stalled the launch of the GP data collection scheme last year."
"Data Saves Lives: Reshaping Health and Social Care with Data1 sets out far stronger safeguards, with researchers only able to access data through trusted research environments (TREs). This means that data linked to an individual will never leave a secure server and can only be used for agreed research purposes. All access to the data and analysis will be monitored to reduce the risk of data breaches or other misuse."
"Patients will have greater access to and control over their data including by simplifying the opt out processes for data sharing and improving access to GP records. The public will also be consulted on a new “data pact” which will set out how the healthcare system will use patient data, and what the public has the right to expect."
HIFA profile: Richard Fitton is a retired family doctor - GP, British Medical Association. Professional interests: Health literacy, patient partnership of trust and implementation of healthcare with professionals, family and public involvement in the prevention of modern lifestyle diseases, patients using access to professional records to overcome confidentiality barriers to care, patients as part of the policing of the use of their patient data. Email address: richardpeterfitton7 AT gmail.com
