Here are the outcomes of our workshop.
The UNWDF has one day to go and its background can be seen at the Global Digital Compact | Office of the Secretary-General's Envoy on Technology (un.org) <https://www.un.org/techenvoy/global-digital-compact> The UN's technical envoy is leading a move to a global digital compact which will cover all forms of information governance with extra detail for the most sensitive data - health data.
The main themes of the workshop were the citizen and health professional as part of the data processing systems of personal health data, using as examples, the collection of health data in diverse health communities in three continents.
Most importantly the workshop supported a proposal for a UN and NBS supported emergent global standard for personal health data processing.
For personal health processing there are
THREATS
- poor digital literacy
- health inequalities
- lack of human resources
Patient/ professional digital literacy assessment is necessary during planning and design for the implementation of Digital health technology.
WEAKNESSES
- inadequate training
- lack of basic infrastructure and equipment
- poor coordination when implementing DHTs
Professionals cannot access the whole data flow of children in the early intervention information system. Sharing data of children depends on customized settings in the information system.
Need an international framework standard on how to translate information from the language of specialists to the easy language and on to what extent can we provide access to the information, to whom, and how to share the data.
OPPORTUNITIES
Change the basic assumptions, values, norms and artefacts of data personal health data processing by including the data subject as part of the development and implementation team
- Improve patient digital literacy
- Increase equity
- Promote more patient-centric design in upcoming DHTs
- Streamline healthcare resource expenditure
- Provide a means to learn international best practices
- "Will the UN and NBS of China support work towards a set of global personal health data processing standards?
- "How will the UN and NBS help the public to be educated and kept to data about digital health data and how to be digitally health literate?
- "How do we support health data processing in rural and tribal areas in LMICs?"
- How will LMICs teaching digital literacy to citizens and health professionals. Could one quality assured multilingual online WHO, NBS or UN source of digital education be made available?
- "If commercial companies are seeing our confidential data should not see the confidential financial contracts under which they are using our data?
- "Can the UN and NBS promote the practice of openly sharing personal health data with the data subjects to which the data refers to improve citizen and public understanding, consent, trust and safety?
- "Do we need more professionals to educate citizens about digital data and digital health?
- “Digital health curricula are needed in all countries.
Universities do not run comprehensive digital health data undergraduate curricula. Could the UN and NBS help to promote undergraduate digital health education for
all health workers? (Pontefract and Wilson “Using electronic patient records: defining learning outcomes for undergraduate education”)
- "Can the processing of children’s personal health data by professionals and parents and/or legal guardians be standardised internationally?”
- “Are other countries improving the health of people with long-term conditions through health IT?”
- “Could countries use public health data kiosks similar to those set up in India for civil administrative matters
HIFA profile: Richard Fitton is a retired family doctor - GP. Professional interests: Health literacy, patient partnership of trust and implementation of healthcare with professionals, family and public involvement in the prevention of modern lifestyle diseases, patients using access to professional records to overcome confidentiality barriers to care, patients as part of the policing of the use of their patient data Email address: richardpeterfitton7 AT gmail.com