Webinar: Rare Disease Day Webinar on 29 Feb 2024 from 12.30 pm to 1.30 pm UK/London

22 February, 2024

Posting the information below on behalf of NIHR Cambridge Biomedical Research Centre (with permission). Please contact them if you have any queries.

I have been informed that people can attend the webinar from outside the UK, but there may be some elements of the rare disease research that the speakers' talk about that is more applicable to the UK.



Free online lunchtime session for Rare Disease Day (RDD)

This year, Rare Disease Day is on that rarest of days, 29th February, and to mark the occasion NIHR Cambridge BRC<https://cambridgebrc.nihr.ac.uk/rare-disease-day-webinar-29-february/> is hosting a free, online session on patient-centred rare disease research.

Join us over lunch (with your food!) from 12.30-1.30pm and find out more about for the journey from genes to mental health, co-designing research with the public and targeting novel therapies for children with neurodisabling disorders.

It's a great opportunity to hear about rare disease research in your area, and hear from our speakers who will share their unique perspectives, knowledge and experience of rare disease patient-centred research. This will be followed by a panel discussion and Q&As from the audience.

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HIFA profile: Julie N Reza is a UK-based specialist in communications for biosciences, global health & international development (www.globalbiomedia.co.uk). She predominantly works with NGOs and not-for-profit organisations. Previously she was the senior science editor at TDR, based at the World Health Organization (WHO) in Geneva; prior to this she worked at the Wellcome Trust, UK, leading educational projects on international health topics including trypanosomiasis and trachoma. She has a PhD in immunology and a specialist degree in science communication. She also has several years research and postgraduate teaching experience. She is a member of the HIFA Steering Group and HIFA Social Media Working Group. www.hifa.org/people/steering-group


naimareza AT hotmail.com