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Stichting Rare Care World

'Rare is common: more than 7000 rare diseases affect around 400 million people worldwide (source: WHO). Sadly, for many of those affected receiving the right treatment at the right time is often not a matter of course. Most of the rare diseases are genetic and present in childhood. 30 % of the children born with a rare condition do not reach the age of 5 years. Delays in diagnosis are often caused by a lack of awareness... At RareCare we aim to be an open information resource for individuals with a rare disease, their families and their care providers.'

Location

Zwolle
Netherlands
See map: Google Maps
NL

World Organization of Family Doctors (WONCA)

'WONCA is an unusual, yet convenient acronym comprising the first five initials of the World Organization of National Colleges, Academies and Academic Associations of General Practitioners/Family Physicians. The Mission of WONCA is to improve the quality of life of the peoples of the world through defining and promoting its values, including respect for universal human rights and including gender equity, and by fostering high standards of care in general practice/family medicine. WONCA's short name is World Organization of Family Doctors.

Location

Bangkok
Thailand
See map: Google Maps
TH

European Academy of Paediatrics

'The European Academy of Paediatrics exists to promote the health of children and young people in Europe. It aims to improve standards in training, service and research and to represent the professional interests of paediatricians in the EU. It incorporates the section of paediatrics of the European Union of Medical Specialists and therefore has influence in the political arena to advocate for children and young people as well as for the profession.'

Location

Brussels
Belgium
See map: Google Maps
BE

Indian Academy of Pediatrics

The Indian Academy of Pediatrics is the largest and most representative association of Pediatricians in India, with 23,000 members. One of the major activities undertaken by the IAP since its inception has been to organize Continuing Medical Education (CME) programs by holding conferences, symposia, lectures and other meets all over the country. IAP’s head office is in Mumbai, while Delhi is the seat of its official publication – Indian Pediatrics.

Location

Mumbai
India
See map: Google Maps
IN

World Medical Association unites doctors worldwide towards healthcare information for all

19 December, 2019

As we approach the end of another successful year, the HIFA Steering Group is delighted to announce that the World Medical Association (WMA), which represents more than 10 million doctors worldwide, has unanimously approved and published a Statement on Healthcare Information For All in recognition of the significance of tackling information poverty to improve global health. This statement was proposed by the British Medical Association which has long supported HIFA's efforts to improve access to

Esther

Infolep

'Infolep is the international knowledge center for access to (digital) information resources on leprosy and related subjects.'

Location

The Hague
Netherlands
See map: Google Maps
NL

Universal Health Coverage Day, 12 December

11 December, 2019

HIFA joins with WHO, UHC2030 and others in celebrating Universal Health Coverage Day, 2019.
Below are the key asks from the UHC website: https://universalhealthcoverageday.org/key-asks/

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1. Ensure Political Leadership Beyond Health
Commit to achieve UHC for healthy lives and well-being for all at all stages, as a social contract.

2. Leave No One Behind
Pursue equity in access to quality health services with financial protection.

This month we celebrate 10 years since the launch of HIFA-Portuguese!

12 November, 2019

HIFA-Portuguese was officially launched on November 19, 2009 in Maputo, Mozambique when the first 350 members received the first message sent directly from the launch event (see photo).

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