I joined this webinar "United Nations World Data Forum 2023: Programme proposal submission" on June 7th and am making a proposal for the UNWDF conference in April 2023 Hangzhou, China. The proposal submission asks for
collaborator organizations. Would any HIFA linked organizations be interested in being collaborators for this UN world Data Forum conference?
If this is of interest, I can be contacted at richardpeterfitton7@gmail.com
The UNWDF proposal title is "Inclusion of the citizen in the world data cycle and asking the UN to support a global personal health data processing standard" and the the main description of the content as they relate to the selected topic is:
Digital health solutions and digital technology have played a major role in the world's response to Covid19 and will continue to do so. Personal health data is useful to governments but also to citizens - especially citizens who experience disabilities. The governments of G7 countries and of the EU are supporting systems to allow 10% of the world's patients to access their personal health data. We will illustrate the use of and access to personal health data to citizens and will suggest that citizens will be a strong pillar of information governance of the UNWDF's collection of personal health data. We will present patients' experience of the use of their personal health data and the national standards that we have developed to allow patients to access and add to their personal health data. We will also call for the UN to support the development of an emergent UN global standard for the processing of personal health data by governments, corporations, technology companies, health service providers and citizens.
Moderators: Ola Awad and Shaida Baidee, co-chairs of the UNWDF Programme Committee
Part I: Organisers and regional context
Panelist: Francesca Perucci, Assistant Director, Development Data and Outreach Branch, United Nations Statistics Division (UNSD-DESA)
Panelist: Mr. LV Qingzhe, Deputy DG, Department of Statistical Design and Management, National Bureau of Statistics (NBS-China)
Panelist: Rachael Beaven, Director, Statistics Division, United Nations Economic and Social Commission for Asia and the Pacific (UNESCAP)
Part II: Programme Committee perspective
Panelist: Nnenna Nwakanma, Chief Web Advocate, World Wide Web Foundation (WWWF)
Panelist: Andrea Ries, Senior Advisor Development Effectiveness, Swiss Agency for Development and Cooperation (SDC)
Panelist: Xuming He, President-Elect, International Statistical Institute (ISI)
Panelist: Amos T. Kabo-bah, Ag. Dean-International Relations Office, University of Energy and Natural Resources, Sunyani-Ghana
HIFA profile: Richard Fitton is a retired family doctor - GP. Professional interests: Health literacy, patient partnership of trust and implementation of healthcare with professionals, family and public involvement in the prevention of modern lifestyle diseases, patients using access to professional records to overcome confidentiality barriers to care, patients as part of the policing of the use of their patient data
Email address: richardpeterfitton7 AT gmail.com
